COPING WITH EPILEPSY/ACCEPTANCE: THE BIGGEST PROBLEM – WHAT DO YOU RECOMMEND PARENTS DO ABOUT FRIENDS WHO SEEM SO UNCOMFORTABLE AROUND THEM? WHAT ABOUT THE HANDICAPPED YOUNG ADULT?

July 10, 2011

“What do you recommend parents do about friends who seem so uncomfortable around them?”"Friends, even good friends, may be uncomfortable asking about your child’s problems. They may be so uncomfortable they can’t even ask how he’s doing, or what’s new? In many, perhaps most cases, it’s not because they don’t care. Perhaps it’s because they care too much and are afraid of hurting your feelings or bringing you more pain. Perhaps the best way for you to help them is to bring the questions up. Make them feel that you are comfortable talking about your child and his problems with them. You may have to be the one to take the lead.”"What about the handicapped young adult?”"One of the saddest experiences for a counselor is to encounter a young adult with limitations, whose seizures are under control but who has been so overprotected by loving and caring parents that as a child he never learned to care for himself, never learned survival skills. The parents are now getting older and finally realize they won’t be around forever to care for him. They begin to worry about what will happen.”Our local epilepsy association has apartments where we teach these individuals independent living and survival skills. But the skills are much harder to teach and to learn at an older age. It is difficult to break patterns of dependency that have built up over the years. Much of the overprotection and the resultant handicap could have been prevented if the family and the child had had good early counseling. The life of the whole family would have been much better.”*237\208\8*

THE FACTS-THE FIRST SEIZURE AND THE DIAGNOSIS OF EPILEPSY: OTHER CAUSES OF IMPAIRED OXYGEN SUPPLY TO THE BRAIN-VERTIGO

April 28, 2009

Doctors are careful to distinguish true vertigo—a perception of dysequilibrium of the body in its relation to space—from non-specific feelings in the head such as ‘dizziness, or ‘muzziness’ which are so often associated with anxiety and depression. True vertigo is rarely a symptom of a partial seizure in a temporal lobe. Far more common is vertigo due to a disorder of the balancing organ—the labyrinth—lying within the inner ear. The labyrinth may malfunction in an episodic way in both children and adults. In young children the distinction between paroxysmal vertigo and partial seizures may not be easy, as in both the child is frightened, and may either hold on to his mother or fall. The distinction rests on the absence of amnesia or confusion after the attack of benign paroxysmal vertigo, and the presence of abnormal tests of labyrinthine function.

*42\188\2*

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